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Our Blogs

Welcome to our blog. Keep an eye out for the latest news and health care trends right here.

Categories: Innovation, Policy, Rare Disease, Stakeholder Forums

European Reference Networks: Bring optimal care to people living with rare diseases

Categories: Patient Advocate, Payers, Policy, Rare Disease, Strategy

Do You Know Enough About Value?

Categories: Patient Advocate, Patient Engagement, Strategy, Uncategorized

Rooted in Reality

Categories: Patient Advocate, Patient Engagement, Policy, Priority partners, Rare Disease, Strategy

The Untold Value of Patient Insights

Categories: Compassionate Use, Expanded Access, Market Access, Patient Advocate, Pre-Approval Access, Pre-approval Drug Access, Report

Expanded Access to Experimental Medicines – Where is Federal Legislation taking us?

Categories: Compassionate Use, Expanded Access, Policy, Pre-Approval Access, R&D, Strategy

Trial Innovations: Potential Impact on Access to Experimental Treatments

Categories: Compassionate Use, Expanded Access, Policy, Pre-Approval Access, R&D, Strategy

Pre-Approval Access Program Value Proposition

Categories: Patient Advocate, Policy

Protecting Patients’ Access to Health Insurance: Perspective from The National Coalition for Cancer Survivorship (NCCS)

Categories: Policy, Priority partners, R&D, Strategy

Conflicts of Interest for Patient-Advocacy Organizations: Raising an Old Red Flag?

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