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Welcome to our blog. Keep an eye out for the latest news and health care trends right here.

Categories: Rare Disease, Report

Bringing the mission and values of our work directly to patients

Categories: Patient Advocate, Patient Engagement, Policy, Priority partners, Rare Disease, Strategy

The Untold Value of Patient Insights

Categories: Compassionate Use, Expanded Access, Market Access, Patient Advocate, Pre-Approval Access, Pre-approval Drug Access, Report

Expanded Access to Experimental Medicines – Where is Federal Legislation taking us?

Categories: Compassionate Use, Expanded Access, Policy, Pre-Approval Access, R&D, Strategy

Trial Innovations: Potential Impact on Access to Experimental Treatments

Categories: Compassionate Use, Expanded Access, Policy, Pre-Approval Access, R&D, Strategy

Pre-Approval Access Program Value Proposition

Categories: Patient Advocate, Policy

Protecting Patients’ Access to Health Insurance: Perspective from The National Coalition for Cancer Survivorship (NCCS)

Categories: Policy, Priority partners, R&D, Strategy

Conflicts of Interest for Patient-Advocacy Organizations: Raising an Old Red Flag?

Categories: Innovation, Patient Advocate, Patient Centricity, Patient Engagement, R&D, Rare Disease

Accelerating IBD Research Through Clinical Trial Participation

Categories: Expanded Access, Policy, Pre-Approval Access, Strategy, Uncategorized

Expanded Access Expectations of the 21st Century Cures: Frequently Asked Questions

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