An opportunity for patients and patient advocates living with LP to provide their expertise in the LP space as advisors
Lichen Planus Advisor Opportunity
VOZ Advisors is a boutique consulting firm working with pharmaceutical and biotech companies to foster greater collaboration between those developing treatments and patient communities.
A global pharmaceutical company interested in serving patients impacted by dermatology conditions would like to better understand the patient experience and gain insights on what matters most to people living with inflammatory diseases such as Lichen Planus (LP).
On behalf of the company, VOZ invites patients and patient advocates living with LP to provide their expertise in the LP space as advisors. If selected as an advisor, you would be asked to provide feedback on relevant topics via various engagements in 2025. Example of activities that advisors could partake in may include:
- Advisory boards with other people who live with LP
- Online reviews of materials created about LP research
- One-on-one discussions regarding topics as related to LP or dermatology
All engagements will be virtual, either via email or through online meetings. The only experience needed to participate is experience living with LP. Individuals must be 18 years of age or older and have received a diagnosis of LP from a healthcare provider. Advisors will be paid for their time in line with the country fair market value policy.
If interested, please complete a short screener survey securely linked here.
After completion of the survey, you may be contacted by someone from VOZ Advisors to schedule a 30-minute screening call to answer any questions you may have and discuss your fit as a potential LP advisor.
What personal data will be collected during screening?
During the Screening, your personal data will be collected by VOZ Advisors in order to evaluate you as a potential patient advisor for patient engagement activities. The personal data that will be collected includes your contact information, and information you share about your condition, including your experience of the condition, diagnosis, treatment, unmet needs of the patient community, meaningful outcomes, and considerations for designing patient-friendly clinical trials. Additionally, VOZ Advisors will collect information about your race, ethnicity, gender, and sexual orientation to help ensure that the patient advisors reflect a diverse patient population.
What happens with my personal data?
If you decide to participate in the Screening, your personal data, including information about your race, ethnicity, gender, sexual orientation and physical and mental health, will be processed (e.g. collected, used, disclosed, stored, and disposed) by VOZ Advisors. The data you share will be shared with the sponsor company to determine if you are a good fit for this patient engagement activity.
Your personal data will be retained by VOZ Advisors for the period of time necessary to identify patients diagnosed with LP for the patient engagement activities. After this period, your personal data will be securely destroyed.
Your rights regarding your personal data
You have the right to request access to your personal data, request corrections of any errors in recorded personal data, or where personal data may be missing or incomplete ask that it be completed. You also have the right to ask that your personal data collected and used for the Screening to be erased or that its use be .
We do not retain personal information longer than is necessary for us to achieve the purposes for which we collected it. If you are not a good fit for this project, we will destroy your information. When we destroy your personal information, we do so in a way that prevents that information from being restored or reconstructed.
VOZ Advisors can be contacted by emailing Rashmika Prakash: rprakash@vozadvisors.com
VOZ Advisors